Born
in Zimbabwe, Thandi Haruperi says she feels as much a Zambian
as she does a Zimbabwean. Raised in Zambia since she was two
her parents made sure she maintained her sense of self.
An
ex- Kabulonga Girls High School student in Zambia, Thandi met
and married her first love. After 12 bittersweet years and 2
wonderful daughters the relationship floundered. Thandi
escaped to the UK to mourn her lost dream and start a new
life.
After
enormous struggles to adapt to a new culture, Thandi settled
into a more comfortable life in England working in housing for
7 years. In her spare time she found herself doing a lot of
voluntary community work as a way of giving back to life. She
was a founding member of Pamodzi, a community-based
organisation formed with the aim to raise HIV/AIDS awareness
amongst Zambians resident in the UK. The work opened her eyes
to the magnitude of the problem in her community and the
misconceptions people had around HIV/AIDS. People had been
indoctrinated into believing that HIV was for the morally
irresponsible but her experience in community work showed her
differently. Even decent, normal and respectable people were
dying. Stigma was making it impossible for people to test and
take action against HIV and AIDS.
Another
observation
on was that most people were dying because they had
responded late to the disease. For most people the prospect of
taking an HIV test and testing positive was worse than death.
This was very sad because unlike developing countries, there
was a lot of treatment, services and peer support available in
the UK.
(Pic: Thandi and Desmond Tutu)
Challenged
by what she saw and knew Thandi employed a strategy that was
to test her; if she was going to be an effective educator she
had to start with herself and take the test. How could she
preach and advocate about something she had no experience of?
As a commitment to her work she took her test, which changed
her life forever. In December 1998 her test came back
positive; with a profound effect, Thandi turned her shock and
anger into action for herself and others.
Described
as one of the UK African community’s most passionate
campaigners for HIV positive people, Thandi is committed to
empowering and enabling HIV positive people to live longer and
fulfilled lives. She has since worked with several HIV/AIDS
organisations as a peer educator and sat on various Management
Boards. Most of her work over the last few years has revolved
around reduction of stigma and discrimination through
training, peer support and advocacy. She has given national
and international keynote speeches on issues for HIV positive
people with a particular focus on African communities. Through
this she has been involved in informing policy and promoting
good practice.
In
recognition of the gap in culturally sensitive approaches and
the disparities that exist between the health and the
environments of different people and groups in the UK, Thandi
co-founded Perikoth Consultancy in 2001, Perikoth is a health
promotion firm whose main aim is addressing health
inequalities through education and consultation. Her main
focus is on training and consultancy.
Thandi
remains well and presents no symptoms. She has remained off
medication (Anti-Retrovirals) as her blood counts have
remained good. She puts this down to positive attitude,
talking about ‘it’, reaching out to others and healthy
living. While everyone is not so lucky, Thandi recommends that
everyone gets the right information to enable them make
informed choices. Thandi acknowledges that at some point she
may have to take medication and says when that time comes she
will deal with it. Meantime she will not only enjoy her health
and but use it to do what need to be done She does not live in
fear of living with the virus. It has in fact become a great
motivator for her. To treasure each day she is alive and to
achieve all she wishes for. She also points out that’s her
price for testing early. She sees this as a rebirth – an
opportunity to make good to the world whilst she can and
hopefully through her experience help other people come to
terms with their status and live positive, confident and
productive lives right to the very end.
Thandi
champions facing death as a worthy person, to this end she is
also a full-time student pursuing a degree in Health Promotion
besides all her many plans.
HIV/AIDS
Awareness